Pediatric Palliative Care


pediatric palliative care


Promotion & Value Proposition

  • Pediatric Palliative Care Field Guide: Catalog of resources, tools, and training to promote pediatric palliative care innovation and growth.
  • Putting Pediatric Palliative Care in Prime Time: Benefits, Value Proposition, Messaging, and Resources: Describe the value of pediatric palliative care for patients, families, and health care organizations. Identify action steps to support pediatric palliative care integration across the care continuum. Center to Advance Palliative Care, 2017.

Pediatric Palliative Care Toolkits

  • Pediatric Palliative Care: Billing and Business Planning: Pediatric palliative care leaders have to consider a number of different funding strategies and opportunities in order to provide comprehensive, quality care. This toolkit provides guidance for designing a business plan and budget, navigating concurrent hospice care, and utilizing effective billing practices.
  • Pediatric Palliative Care Delivery: Guidance on program design and program operations for the pediatric palliative care program.

Training & Education

  • CAPC Pediatric Clinical Training Recommendations and accompanying Learning Pathways (by discipline), developed in partnership with the Pediatric Palliative Care Task Force, highlight the skills necessary to effectively care for these patients and offer resources to fill training gaps.
  • EQIPP: Talking About Serious Illness: Co-developed by CAPC and the Courageous Parents Network, this American Academy of Pediatrics course provides 5.0 MOC Part 2 points and 25.0 MOC Part 4 points. The course teaches pediatricians from any specialty how to engage in discussions that facilitate open, honest, and compassionate care for seriously ill children and their families.
  • EPEC - Pediatrics: A comprehensive adaptation of the EPEC curriculum designed to address the needs of children and their families.
  • Pediatric Pain Treatment and Opioid Prescribing: These videos are designed for medical students on their core pediatrics rotation and include topics from the newborn nursery, inpatient, and outpatient domains.
  • American Academy of Pediatrics (AAP) Online Curriculum: Resilience in the Face of Grief and Loss: A curriculum to help pediatric clinicians reflect on grief and loss, communicate with children and their families, and manage emotions after challenging patient care experiences.
  • NIH NINR Palliative Care: Conversations Matter®: Evidence-based materials for starting and continuing conversations about pediatric palliative care with patients and their families.

Program Measurements

  • Measurement Best Practices: Use this toolkit to select program measures that demonstrate value to stakeholders and support quality care delivery. Overcome common measurement obstacles and synthesize program data.

Standards & Guidelines

Clinical Tools

Patient & Family Resources